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Indian Journal of Medical and Paediatric Oncology
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Year : 2020  |  Volume : 41  |  Issue : 5  |  Page : 707-717

Delivery of services to childhood cancer survivors in India: A national survey

1 Department of Quality Care, Research and Impact, Can Kids, New Delhi, India
2 Department of Reproductive Medicine, Milann Fertility Centre, New Delhi, India
3 Department of Pediatric Hematology and Oncology, Rajiv Gandhi Cancer Institute and Research Centre, New Delhi, India
4 Department of Pediatrics, Division of Pediatric Oncology, All India Institute of Medical Sciences, New Delhi, India
5 Department of Quality Care, Research and Impact, Can Kids; Department of Medical Oncology, Max Super Speciality Hospital, New Delhi, India

Correspondence Address:
Dr. Ramandeep Singh Arora
Department of Medical Oncology, Max Super Speciality Hospital, Saket, New Delhi
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Source of Support: None, Conflict of Interest: None

DOI: 10.4103/ijmpo.ijmpo_6_20

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Background: Continuum of care is an important concern for childhood cancer survivors. Studies from high-income countries indicate a significant development in services to these survivors. Similar information is unavailable from India. Methods: An online survey form was developed and sent to 86 centers. Data were collected over a 6-month period in 2017. Results: Fifty nine centers responded (44.1% private sector, 33.9% public, and 22.0% charitable trust). The services are mainly provided (91%) within routine oncology clinics. There is no upper age limit (61%) or time period limit (63%) for follow-up at most of the centers. The major barriers for follow-up are distance, lack of knowledge, lack of adequate facilities, and patient priority for follow-up. Conclusion: This survey provides baseline information on current service provided to childhood cancer survivors in India. There is a need to inform, educate, and sensitize the survivor and their family as well as improving services.

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